An update on Kate

When we left the hospital with Kate, the main problem was that one of her liver enzymes was elevated. (The enzyme is called GGT.) So when she was a couple weeks old, she was put on a medication to lower the GGT. The medication worked, so she was taken off of it a few weeks ago. Well, yesterday she had her blood drawn again to make sure she was still in normal range and... her GGT levels are back up! Dang it! So that's just stressful and crappy.

Kate is the first patient with Alpha-1 Antitrypsin Deficiency that her pedicatrician has ever had. Actually, she is the first Alpha-1 patient in the history of the clinic, which has 7 pediatricians. It's pretty lame because her doctor doesn't really know what to expect. Luckily, Kate's pediatric gastroenterologist has seen 40-50 cases of this in his career. So the pediatrician keeps in contact with that GI doctor, which makes me feel a little better. So now we are just waiting to hear back from the GI doctor to see what we should do at this point. I'm assuming Kate will need to stay on the medications to keep things normal. I guess that's not the end of the world. But having elevated liver enzymes is not a great sign, so I'm nervous either way. I need to just be positive I guess. I'm just so afraid of the unknown.

ANOTHER UPDATE:

Kate's doctor said we will test her blood again in 2 months to see whether or not her liver enzymes are more elevated. Then we will go from there. We are going to fast and pray for our little Kate and hope for the best.